I'm getting my long awaited Remicade infusion tomorrow! Who knew that having an IV in your arm for 3 hours could be something to look forward to.
The Remicade has gradually gotten less effective over time though. I'm completely horrified of surgery, but know that is my next step early next year. I worked in the assisting in the operating room for 4 years. The more I know, the worse off I am. When I had my c-section in April, I knew what was in the O.R. and on the back table, I just didn't want to see it. Every instrument they called for every noise they made freaked me out! I honestly am just better being left in the dark on certain things.
So, tomorrow at 10 am sharp I will be there w/my book in hand ready for the juice. Fill 'er up!
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Hi Hillary, good luck for tomorrow. Is this really the end of the line for you? Have you seen that in the UK some are now getting a different type of treatment..it's called NLP - Neurolinguistic Programming and is basically hypnotherapy for Ulcerative Colitis? From what I have read it's on the National Health Service in the UK. Anyway, it's totally different from the current treatments for UC, but who knows...it could be the answer...well..the doctors really don't know what causes this and I'm the first one in my family to ever get something like this.
ReplyDeleteOh my goodness, Hillary! I love that you have a new blog, I will add a link immediately!
ReplyDeleteGood luck with the infusion today.
Would love to hear all about your pregnancy and the arrival of your little boy! x