I was lurking on the j-pouch community site the other night, and a topic caught my eye. Once we get the colon removed are we cured? I've always thought yes. We are cured of UC, but not of our genetic tendancy to welcome auto-immune diseases. So it's safe to say we are cured yes? A guy said "no." He went on to say that they remove the organ that is being affected by UC. Well isn't UC affecting the colon, not your hand? Something about since they can't tell you what causes it, there's no cure. Well, we can't really pin-point what causes a lot of diseases... Basically a colectomy is the current treatment not cure.
I'm so confused by his statements. I feel like I just walked in a big circle. Where else would UC be a problem once the colon is out of the picture? Yes, the rectum but most of the time that is removed also. I plan on keeping my rectum, so I guess i'll always have UC, and never be cured...
Thoughts?
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yep..I hadn't realised that neither until about 4 weeks ago when I read Martin's number Two's. It's a bit of a bugger eh!
ReplyDeleteI'll have to go check it out. Haven't read his blog for a bit. Thanks!
ReplyDeleteColectomy is a treatment. It certainly made lots of aspects of my life much more possible.
ReplyDeleteI was absolutely petrified and disgusted at the prospect but it turned out much better than I thought it would.
Hope you are feeling OK
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